Achraf B.

“My daughter was diagnosed with cystic fibrosis through newborn screening in 2015. We spent the first five years of her life, vigilantly conducting airway clearance therapies. In 2019, she was approved for a new medication made by Vertex called Kalydeco,” Freedman said. “This medication, while not a cure, has certainly improved our quality of life. We are no longer beholden to the heavy equipment